Support groups

So, while we don't have any concrete proof that hereditary spastic paraplegia (HSP) is what I have, the neurologist I went to most recently said it is the most likely thing at this point. There isn't really a ton info out there right now, but I did find this website that has a lot of good information: http://www.sp-foundation.org/

There is also a "Support Group" (via email) that you can sign up to. There is a fair bit of activity on it, so choose the daily email if you don't want to clog up your inbox with every message or you can just read the messages online. It is a great place to ask questions, someone is bound to have experience or an opinion.